Frankie was born in June. My pregnancy and birth were normal. At birth Frankie had enough Neurofibromas to be diganosed with Nerofibromatosis, a genetic disorder that I got from my bilogical father and passed to Frankie. I led a normal childhood and life with Neurofibromatosis so I never considered the that Frankie would not.
In November, Frankie and I were visiting relatives in LasVegas. While there Frankie started to a strange jerking movement. It looked like he was straining to go to the bath room or pull something heavy. He was doing neither it was seizures known as Infantile Spasms. It took about three weeks for the doctors to know what it was wrong with Frankie. I took him to the doctor several times. He would have seizures on the way there, seizures on the way home but never in the doctors office. I video taped him having these jerking movements and showed it to my doctor. We were sent to a neurologist that day. Dr. Goins our neurologist sent us straight to the hospital. At the hospital I learned to give Frankie shoots in the leg of ACTH a steroid used to treat this rare seizure disorder Frankie was suffering from.
We were sent home fearing the worst. This kind of seizure disorder kills many brain cells and is extremely hard to treat. Frankie was miserable from the steroids but by New Years the ACTH was working and Frankie was not having seizures. He was sleeping a lot. When awake he didn't like anything but being held by me or my little sister Niyah.
